A Journal Of My Mother's Fight With Cancer August 15th, 2010
69
This morning we had breakfast together as a family. I jumped in the shower , preparing for the morning. We missed church today, because the decision was to go to the facility and see mom. 12 hours worth of sleep had rejuvenated me and my eyes were clear. I admit I tossed and turned a little, but the man upstairs allowed me to rest last night. So many things going off in my head this morning I did not know if I was coming or going. Called the sister beneath me and she decided to go and see her too. Our youngest sister was also on her way. The third sister is way to much drama for her age and her deep-rooted issues I can no longer deal with. She is now in the hospital with a blood clot in her right leg. If only she would choose to get help instead of putting a needle in her arm, then she would not have these issues. All of us are exhausted by her lifestyle and can no longer deal with what she is doing to herself. She will not accept help, so there is not much we can do but pray. Raising her daughter has been a blessing and my niece has done a complete 360 since she has been with us. I am still going on my own but have found renewed strength since this journey has began. Today was a good day although it was 112 degrees, I began to feel better. Maybe I am beginning to accept this dreaded moment and embrace what is happening now. I hope my days stay this way, but God only knows what each new day brings.
9:00 am
Got on the rode to see mom. Noticed that vehicle was a little low on gas so pulled into a gas station to get fuel. The sun is already hot this time of morning and I cannot pump the gas fast enough.
9:30 am
Arrived at the facility and had a little tiff with my husband. But ended up back on track. I hate arguments. Focused on mom and went into facility. Walked into room and gave her a fresh pillow from home, a reminder that we were there for her. Carol is a wonderful nurse and one of the most compassionate people a person can meet. She met me in the hallway and told her that I decided not to go to church today. She smile and I went into the room. A cna was sitting there and I did not even ask her name, but she was not very pleasant. I was cordial and told her I would feed mom. They had a pureed plate on the table. Mom does not eat pureed food, so she left to get another plate. Told mom good morning and her yes opened and she smiled.
She still had color no jaundice, no edema, all clear. They had a fentynl patch on her and also gave her oxycotin. She was in another world and only wished to rest. She ate 9 bites of egg, a half a piece of bacon and drank a glass of water and a half cup of coffee. Not bad considering her eyes are closed.
9:45 am
Mom had defecated in her panties and started to cry. I told her it was o.k. , I rang the bell for assistance and Ms. Unpleasant arrived. She aided me with placing her on the commode and then appeared irritated because she had to assist. It took about 5 minutes and I asked mom if she was finished. She nodded with tears in her eyes, yes. The cna stood there and my sister was sitting in the corner. We looked at each other and it was like the young woman did not wish to wipe her bottom. I handed her the moist towelettes and told her that mom would not allow me to do this. She was to weak to do it herself therefore she was to clean her up. She placed her latex gloves on and proceeded to clean her with a little hesistance. Why is this young woman in this field?
10:00 am
Assisted the cna with placing mom in bed. I noticed there was bowel on the chux and told her that we would have to change it. She looked at me again and then I commanded her to replace it. I am not normally like this, but it is irritating when someone is treated in this manner. Positioned mom into the upright position and gave her more water. She sat there dozing in and out and I just watched her peacefully. My sister and I went outside to chat and I heard the phone ring. I answered it and it was our troubled sister. She asked to speak to mom so she could tell her she was in the hospital with a clot in her leg. I told her mom was resting and she would get the message. Mom opened her eyes and I told a big talltale, I said that our sister said she loved her and that she would call her later. I was not telling mom that she was in the hospital while mom laid there fighting for her own life. I hope that isn't cruel and I hope what I did was not wrong, but it was to protect mom from the situation. I am still irritated because she has never came to see her since all of this has began.
11:00 am
Mom's friends came to visit and they encouraged her to finish taking her pills. They are blessings and a bundle of fun. Debbie wept and I told her it would be fine. Mom would improve, I wonder if that is my faith? Looking over at mom I knew she was listening. Mom just smiled. Went to the ladies room and flowers had arrived. My sister recieved them. She asked mom who is Joyzie? Mom replied , "she is one of God's Angels?" My sister's eyes lit up and she asked me if I knew Joyzie, I said yes she is one of the writer's on Hubpages and she is a blessing to many. Mom never new about GhostWhisperer 77 but what she does know is she is an angel. She sees things others cannot see.
11:30 am
SIster's remained and I left , knowing I had responsibilites on the homefront. I don't know what the temp is, but it is truly hot as the dickens. The care feels like an oven, but it sure is sunny.
12:30pm
Arrived home looking forward to a better afternoon. Dogs were a little anxious so had to piddle around with them. House was quiet and there was Peace. I am trying to gather my thoughts at the moment, because I cannot understand the overhelming peace that has been brought upon me.
1:30pm
Called Hospice mom was doing well just resting and my sister's were still there. Made multiple phone calls to family members and friends. Feeling a little anxious, I just breathed.
2:30pm
Decided to organize mom's belongings in her room. Of course they are not going anywhere, they are just being organized. Looked through all of the arm bracelets, paperwork, and cried.
3:30pm
Called again mom is resting and peaceful. They did the blood draw today, to cross-type for her blood transfusions tomorrow. I believed they did them earlier, boy was I wrong. I gave permission over the phone for them to do it.
4:30pm
Have a sense of euphoria and relief somewhere deep within I feel all will be o.k. I do not know what the weeks will bring but a sense of peace is what I feel.
As I sit and write this who knows what will come, but my strength is building everyday. There is so much going on, that words cannot express what I am feeling right now, but I am thankful for a good day.
Amazon Price: $4.89 List Price: $17.00 | |
Amazon Price: $8.32 List Price: $14.99 | |
Amazon Price: $5.99 List Price: $16.00 |
CommentsLoading...
HI Sis... reading what you have placed here shows a special side of yourself, a side of compassion, love and understanding. You are the rock in the family and that my dear is a blessing to all.
We remain in prayer for you and yours through this... know that you are loved first by the Father, followed by all whom you reach out and touch.
Blessings and Hugs (big ones)
Aevans
As I sat and read this hub journal I recalled back at how many times you made me have faith, your faith shows through your strength.
You have always blessed many here on Hub Pages however this journal is teaching me so many things I needed to learn a long time ago about faith and our walk of faith! God be with you and your Mother!
I am praying for you and yours! God be with you all!!~
this is a beautiful testimony as well as a daily journal...I can read through all of them that you are being held up by the higher power...I will put you in my prayers for strength for you and peace for your mother...may she rest easy and sleep without pain this night. much love to you barbara b
Ghost Whisper is indeed a wonderful person who offers her strength for everyone in need. She is a joy and a treasure.
It sounds like today was a pretty good day, and those good moments will be the ones you remember most. It is also good that you got some sleep the night before. A good night's rest does wonders.
You and your mother are always in my prayers, and I hope tomorrow is good for you both. Take care.
Mike
Awwwwwwwww I am so glad that she loved the flowers that Jesus brought her! He loved them too!!! ;) ROCK ON!!!Give her a HUGE (((((((((HUG))))))))))) from me. Praying for her and you! Sleep peacefully!
Hi AEvans, just checking in. I notice you have met the nurses who do not really want their jobs, even in this lousy economy, if it involves actual care and dignity of the patient. That's something you need to check out for yourself when you have the time and strength. There are thousands of stories just like yours, even one on HP that I know of.
Back to mom, I know she does not want her children to do things for her that she has always done for herself, and this is why: she is your mother, she cannot allow you to take on that role in her mind. It's all psychological, but my Grandpa actually mentally separated me into two separate people, just to deal with me "cleaning him up" because he couldn't accept his granddaughter taking on the task. He would ask me "Don't they ever give you a day off..." Then when we were done and he'd wake up from a nap he'd say, "Oh there you are, have you met my nurse, now where did she go?"
I'm glad she's resting, and you are well. Big Hugs!
Aevans, I am so glad to hear that you have been blessed with a sense of peace! I believe that that feeling is God's presence with you, giving you strength and comfort. The rough patch may not be over yet, but He will see you and your family through this :)
AEvans- glad you found a little peace and quiet, enjoy these moments. Why do nurses who don't care go in for this profession?
I am so thrilled to hear you finally got a good night's rest and that you are feeling a little more peaceful today. THat is very important for your mom. My favorite hospice nurse told us that our loved one needs to know that we will be ok, that many times they will stick around until we tell them it's ok. I also think it's great that you haven't lost all hope. Miracles happen every day, and while none of us ca possibly know what will happen, feeling hope and somewhat at peace will make anything that comes a little easier to bear. In my thoughts always! Have a great week!
Julianna-you are one strong woman, and don't worry about being curt with those who see their duties to your mom with distaste. This is your mother and she deserves loving care from them.
Prayers.
I'm glad that journaling helps you keep your sanity. You're going through a lot - - make sure to take care of yourself.
How is your husband doing, AE?
As caregivers we have to be advocates sometimes and as a fellow nurse I know that is no problem for you. I hope your whole family is doing okay through this difficult time. God Bless you.
I missed seeing this yesterday when you published it so came by this morning. Your peace really shines through!
I know what it is to be on those frontlines with siblings who are there in their various capacities. I also know what it is to have a sibling who puts her own self-centered needs first. I know this is not the time for a lecture "on addiction is an illness, your sister is sick." But it seems (as I read what you wrote) that her confinement in her own hospital is a blessing in disguise. She's not dragging her shit into your mom's hospice room.
Oh yes -- you mention missing church. I have very fond memories of praying and taking communion (on multiple occasions) with my hospitalized dad and the resident chaplin. Is that an option where your mom is?
Anyway, sorry for rambling. Empathy tends to do that to me:-). Much love and many, many hugs, MM
I am so glad you were able to experience a sense of peace and get some rest. You don't have to feel bad about confronting the CNA about your mother's needs; that is exactly one of the reasons you are there, to make sure she gets proper care. I'm glad you are able to discuss things with most of your sisters now; that will make things easier later and help you get know each other even better. I will be praying that you be able to get the rest you need and that God's peace will rule in your heart and mind.
Hi Ae
When you get to the place of being--what is the word? Someone said "curt! Whatever that place is, REJOICE. You have finally reached a place where politeness no longer is a stumbling block for getting what Mom needs and what you need. I remember being placed on hold while trying to get ahold of the hospice nurse on duty. The profanity that came out of my mouth even shocked me!!! When I realized I had been put on hold, I thought the doorbell was going to ring and it would be the police!! But it was a moment where I literally reached a new level of going after what was important at the moment, not in a selfish or self centered way, but more in terms of what makes sense at this moment. What fits reality in contrast to trying to fit into the system which sometimes is so archaic and ridiculous. So I congratulate you!!
You're wonder-filled and so is your Mom and allyour family.
Vern
So nice to hear you had a good day and glad you were able to catch a good night's sleep. I also wanted to say I admire your strength if looking after your Mom and allowing us to be a part of your story. Prayers and our thoughts, Marie xx.
AEvans: I don't know if your Mom is reading this daily journal that you are creating on her behalf, but I do know that whether she is or not, she has a daughter she can be extremely proud of.
God Bless you for this!
Brother Dave.
Julianna,thinking of you and your Mom. Hugs and prayers.
kindest regards Zsuzsy
fight with cancer interesting hub so keep it
I am so pleased to read that it seemed more stable and I am sure the rest done wonders for you. All mu best wishes to you all.
Beautiful Lady, your faith and love is strong. I have walked this walk with my own mother and it is not a walk for the faint at heart. You are tuned in to your mother and to God .. He will carry you when the pain gets too BIG and seems to suffocate .. He's like that you know.
Sending LOVE, prayers and HUGS to you!
Mekenzie
AEvans, Truth is powerful when it is all said and done what is important is how we care for our love ones and others... The Lord is smiling on you for your loyalty.
I think you did a wonderful job helping Ms unpleasant... perhaps her heart will soften at some point? She was gracefully shown her position is much more than just a job... May the Lord strenghten you as you continue to minister to others as you go through this journey with your Mom... In HIS Love, Peace & Blessings!





























Minnetonka Twin Level 7 Commenter 21 months ago
AEvans-I am glad you had a better day today. I feel that peace is growing in you now that you are writing it down. Writing down the words is also an expression of your love for your mother. She would be touched knowing that you are healing through your writing. God bless you, your mom and family. Hugs